How it works
This quiz can help you determine your your current skills, and those you'll need to achieve better medical results. Use this Scorecard to Navigate Medical Journeys with Confidence
Understand the ABCs of Medical Navigation
Our scorecard is tailored to help patients, parents and caregivers pinpoint the critical skills needed for optimal outcomes.
Identify Key Skills
Through our comprehensive assessment, you'll uncover essential skills: Advocacy, Backing, Collaborative Medical Teams and Diagnosis.
Learn from Others in Your Shoes
Parents of medically complex children often say, "I SO wish I had known how to advocate; how to get support; how to fundraise; how to get a diagnosis; how to start at the beginning." Connect and learn from others who have been in your shoes.
Early Intervention
Questions on the scorecard can help you identify where you are on the diagnostic odyssey, so you can accelerate proper diagnosis and treatment. Diagnostic delays can account for poorer prognosis, less timely and effective treatment, mental health impacts, and a host of other problems.
Empower Yourself
Equip yourself with the knowledge and skills to become the advocate you or your child needs, ensuring they receive the best possible care and support.
Get Answers you Need
No more guesswork. Our program provides clear, actionable steps to navigate medical journeys with confidence.
You’ll be scored within the following key areas:
Advocacy
How well you advocate can determine which doctors you see, how quickly your needs are met, whether you get referrals and to whom, and more. Advocacy skills are critical to getting results.
Backing
Take stock of where you get support now, and where else it may be available. We all need massive backing in situations like this: emotional, logistical, financial, educational, social and more.
Collaboration
Complex care and accurate diagnosis often require the expertise of an interdisciplinary care team to ensure that all problems are addressed and care is coordinated. How collaborative is your care?
Diagnosis
The path to rare disease diagnosis takes 5+ years on average. Learning now about the diagnostic odyssey can speed your path to the answers you are seeking.
