Advocacy

How well you advocate shapes which doctors you see, the speed of care, and the referrals you receive. 

Backing

Finding support for financial, logistical, and structural needs can change everything about the journey.

Collaboration & Community

Care improves when providers collaborate---& when peer support keeps you from facing it alone.

Diagnosis

Rare diesease diagnosis often takes 7 years.  Knowing your next step shortens the path.